Wednesday, July 11, 2012

Pushing Patients Around? Not!

I'm on NeHC's mailing list, and this is the first I've seen anything about this meeting in DC (and I know I'm not the first person to have this response either). If you happen to be a patient, and for some reason, are going to be in DC next week, here is an opportunity to tell them how to get better engaged with patients.  My first suggestion would be to provide patients with opportunities to provide input without having to hop on a plane with less than a week's notice.

Given some of the feedback I'm getting from e-patients NeHC seems to be headed down the same path the Partnership for Patients paved a few weeks back. Fortunately, e-patients are not to be pushed around.  I'm sure they'll get a good talking too, starting here.

Please, don't let "Patient Engagement" become the next "Green Marketing".

Consumer Consortium on eHealth Engagement Summit

The Office of the National Coordinator for Health Information Technology (ONC) is a cooperative agreement partner of National eHealth Collaborative (NeHC).

On Monday, July 16, 2012 from 10am to 4pm EDT, National eHealth Collaborative (NeHC) will be hosting the Consumer Consortium on eHealth Engagement Summit in Washington, DC. The Engagement Summit will bring together stakeholders with a common interest in engaging consumers and patients with health IT. The Summit will provide a valuable forum for networking and sharing, highlighting industry activities that are advancing the consumer engagement movement, and further developing the coordinated consumer outreach strategy of the Consumer Consortium on eHealth.

Attendees will have the opportunity to support the Office of the National Coordinator for Health IT (ONC) in providing feedback on the proposed next phase of content for The Summit will also feature a panel discussion on best practices for community-level engagement, as well as demonstrations of innovative eHealth tools and apps aimed at engaging patients and consumers.

The meeting will take place at the offices of Venable LLP - 575 7th Street NW at the 8 West Conference Center.

We invite you to RSVP to attend the Consumer Consortium on eHealth Engagement Summit. Space is limited.

Questions? Email

Demo Your Solution at the Engagement Summit!

Do you have an innovative solution for encouraging consumer engagement?  Provide a demonstration of your solution at the Engagement Summit. Please contact Claudia Ellison, Director of Development at NeHC, at for more information.

The Office ofthe National coordinator for Health Information Technology


  1. This is a bummer. I would have loved to attend, but can't possibly change my schedule to get there next week!

  2. We’re disappointed that you feel that you did not receive adequate notification of the upcoming Consumer Engagement Summit hosted by National eHealth Collaborative (NeHC). In response, I wanted to provide some additional information.

    The July 16 Consumer Engagement Summit has been promoted since mid-May through many communication channels including electronic notices to the nearly 400 people on the Consumer Consortium distribution list and to nearly 5,000 people on our larger NeHC stakeholder list. The event was also promoted by our Consumer Consortium Steering Committee members, through social media, as part of multiple NeHC University programs, and by the Office of the National Coordinator.

    NeHC launched our Consumer Consortium on eHealth early in 2011 specifically to bring together all interested stakeholders to coordinate and collaborate on consumer and patient engagement initiatives. We invite you to join the Consumer Consortium by signing up here: I encourage suggestions as to how we can improve our stakeholder engagement - please contact me at

  3. I completely agree with you, Keith. Sadly, patient engagement still doesn't really mean patient engagement because the patient isn't asked to engage. The panel of "experts" include:
    Lygeia Ricciardi - Office of Consumer eHealth at ONC
    Loyce Pace Bass & Naveen Rao - LIVESTRONG
    Leslie Kelly Hall - Healthwise
    Elizabeth McKnight - Alliance of Chicago
    Lisa Tuttle - Maine Quality Counts
    Richard Schwabacher - Quest Diagnostics

    But where is the patient? We are all patients of course, but speaking specifically from a patient view is a different perspective than those representing organizations. People talking about their health conditions, their hospital and provider experiences is key. But I don't see this in many events promoted (whether largely or last minute) meant to discuss patient engagement.

    Patient engagement doesn't mean organizations talking about patients, it means patients presenting on what it means to be a patient. Let the patients be the experts, not the audience.